St Louis Heart Walk Team Titus!

We participated in the Heart Walk at Busch Stadium in St Louis last weekend, such a wonderful event! It was great to see other supporters and rally for not only heart health but Congenital Heart Defect awareness as well.  I designed some Team Titus T-shirts to raise funds and together we were able to raise over $555 for the American Heart Association! Our families and friends have been so supportive in this journey and we look forward to seeing what other opportunities await us to raise CHD awareness and help other families affected by heart disease. Thank you all!!

We have until June 1st to continue getting donations. We also have 4 large basic Team Titus T-shirts that were donated to us by Fast Yeti who helped me design them. We would like to offer the t-shirts to the fist four people to donate before June 1st via our team page:

 http://heartwalk.kintera.org/metrostlouis/teamtitus1 

Below are photos from the walk....thank you again to all who supported Titus!

6 Weeks Post Op and Rocking it!

We are 6 weeks post Titus's Glenn operation now, and he is doing so great! He had his last post-op cardiology appointment today and we will not be going back for 3 MONTHS! We will continue to give him a half a low dose aspirin per day but otherwise just let him be a baby and do normal things...gosh what a miraculous thing!

Titus is now just over 7 months old, can sit up very well on his own, and has started to make his move to crawling. He has been drooling and gnawing like a dog on anything he can get his hands on. I can feel both bottom teeth ready to surface any day now. He also started grabbing at everything on our plates and smacking his lips together, so we tried to introduce banana, oatmeal, and sweet potato, but he just is not ready. He gags and chokes until red in the face. I am not too worried about it at this point, Evan was not ready for food until closer to 8.5 months either. However, I have to keep in mind that Titus's journey has been different and that many times heart kids develop scarring from intubation and we definitely want to be proactive in recognizing any special needs he may have in the coming months. We will keep trying foods for fun from time to time and if things do not improve by 9-10 months we will call on a therapist to see if anything was damaged from his 3 intubations.

Even though our next appointment is not for another 3 months, I will be updating the blog regularly! Now that things are settling down a bit, we hope to be more active in finding ways to help other heart families locally. If you know of another family facing these challenges that could use some extra support, please send them our way!

Titus at the Cardiologist office waiting for his last post-op appointment...He is such a social butterfly already, bringing so much happiness and light to all he meets with his larger than life smile....