Since we would be driving over 2 hours from Columbia to St. Louis, they wanted to be sure we had ample time with specialists to discuss diagnosis, the plans for birth, treatment options for Baby P, prognosis, and also have any questions answered. Because of the coordination of appointments required the soonest we were able to get in was June 11th. WHAT?? I desperately needed answers sooner than that. I had already waited a month to confirm the defect, I did not want to wait another day to find out what was going on with my little guy!
In the meantime, I did as much reading as I could while caring for a one year old...I researched Pediatric Cardiology departments and their ratings, common heart defects, best pediatric cardiothoracic surgeons, read blogs, etc. While it was stressful and overwhelming, it was actually in some ways therapeutic and readied me for the impending news.
After a full day of research, chatting, calls, and emails, I decided it would be in our best interest to contact St Louis Childrens Hospital to arrange a second opinion. Fortunately a local mom got me in touch with a nurse coordinator there that same day. I laid our story out for her and asked if she could be of any help. She went above and beyond moving schedules around and coordinating appointments for us just two days later with a high risk OB and Pediatric Cardiologist. Finally, the answers were coming....
After a full day of research, chatting, calls, and emails, I decided it would be in our best interest to contact St Louis Childrens Hospital to arrange a second opinion. Fortunately a local mom got me in touch with a nurse coordinator there that same day. I laid our story out for her and asked if she could be of any help. She went above and beyond moving schedules around and coordinating appointments for us just two days later with a high risk OB and Pediatric Cardiologist. Finally, the answers were coming....
Thoughts and prayers are with you and the family. He will be a wonderful bundle of joy and we cant wait to welcome him into our growing family!! In my eyes you have always been strong, smart, loving and caring cousin! Baby p is so blessed to have you as his mommy and your going to do a outstanding job in a hostpital or at home, c-section or not, medication or natural. You may have different obsticals than delivering baby Evan, however it will still be the joys of a new life and i am so looking forward to baby p. lots of love, tons of hugs, and endless prayers sent from my end. Great job on the blog btw, hopefully it helps you to release some feelings as well as keeping others updated :)
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