My mom took Evan for the day so Jake was able to make it to the hospital to see our new digs! It was like a breath of fresh air having him around again...I cannot tell you how many times I sat down to hold Titus and would get thirsty and see my water bottle all the way across the room!
As I mentioned, Titus ended up pulling his NG tube out Friday night and during the rounds Saturday morning the doctors decided they would not replace it right away and allowed me to feed him ad lib. Hallelujah! We have 2 weight checks per day, 8am and 4 pm. So long as he is gaining then we can go home! Easy enough right??
Apparently, even though they have been all over how and how much he is being fed, they don't care to monitor how his weight is checked and the accuracy of those checks. This was seriously disappointing as there were multiple opportunities for error and we could have probably been in a world of trouble had I not voiced my concerns...I mean they are monitoring grams at this point!
My observations:
1. A different nurse is weighing him each time, sometimes even with a different scale. Certainly there is a difference from scale to scale.
2. Some nurses were weighing with his blood pressure cuff on or his lines hanging on the scale, some were holding them up.
3. Some would weigh him with a clean diaper on, zeroing out the scale, and some without. Certainly the weight from diaper to diaper changes a bit.
4. Some told me not to feed before a weight check and others never mentioned it.
5. There were lines and other monitors permanently removed from him each day so its not unrealistic that a gain could be offset by the removal of those.
I wonder how many babies have been sent home on fortified formula because weight gain was not supported under these conditions....BLOWS MY MIND! Luckily, Ty has managed to gain at every weigh in so far despite the differences...
As of Saturday Ty only has the PICC line, heart rate monitors, and a pulse Ox on his hand. We are almost there!
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